I can't believe it's been just shy of a year since the last time I have posted!
Phyllis is doing wonderful and we talk regularly. I flew out to see her in June I think it was? Then I took a trip across country this past summer and made a stop along the way to see her. We live so far apart but we were lucky enough to have several opportunities to meet up.
She has had some minor graft vs host type complications but from what I've been told, it's a fairly common thing. Yay for being healthy :)
Showing posts with label transplant. Show all posts
Showing posts with label transplant. Show all posts
Friday, January 23, 2015
Monday, April 15, 2013
Connections
My recipient had been on my mind all night Saturday night. I sometimes wonder why she weighs so heavily on me at times and then think that maybe it's because she's thinking of me too and our thoughts are connecting. Days will pass and life gets busy and the donation doesn't even cross my mind but then some days I can't think of anything else and I'm amazed all over again at how blessed I am to have been able to be part of such an awesome thing. I wonder about her often and I wish I knew how she was doing. I haven't received an update so I'm going to assume that no news is good news.
Do something amazing today :)
Monday, December 24, 2012
Engrafted Stem Cells!
I received a phone call on Friday with some news about my recipient. The stem cells have engrafted so she's making my blood cells now! She is doing well and was discharged from the hospital which is great news!
Merry Christmas!
Merry Christmas!
Sunday, November 18, 2012
Prayers For Her
Well, I'm not sure which day the recipient was meant to receive the transplant, but by this time she has definitely received it!
The next 100 days are very critical to her recovery. Please pray for her :)
The next 100 days are very critical to her recovery. Please pray for her :)
Friday, November 16, 2012
Donation Day Details
We got there at 6:30am after not sleeping at all the night before. They took vitals and had me sign some consent forms. They drew some blood to check all of my baseline levels and we had to wait for the results to come back before I could get the last filgrastim injection. In the mean time, the vascular surgeon came in and started to prep me to get the line put in. The process was quick and they used lidocaine to numb the area. They did the entire procedure right at the bedside. It caused a bit of discomfort but it wasn't anything major. There were 2 tubes connected to the line so the entire process was done through that... no needles in my arms all day! That was really nice! Otherwise I wouldn't have been able to move my arms around at all.
The blood work came back and I was able to give myself the last filgrastim shot at 8am. Yes, I asked to give myself the shot because I've mastered it over the last 4 days making it completely painless. Per the NMDP, I had to wait 1 hour after the filgrastim injection for the process to begin so that was finally started at 9am. During the process, they want to make sure your blood isn't clotting through the tubes while it's being sent through to the apheresis machine so they use an anticoagulant to avoid that. The anticoagulant they use decreases calcium levels in the body so they give you a calcium drip. Symptoms of decreased calcium include tingling of the lips, possibly fingers, nose or other extremities. Probably 10 minutes in I started to feel my lips tingle a bit so they increased the calcium drip until the tingling subsided.
The entire day was just a lot of waiting. I think around noon the lab took a sample of what had been collected so far to see how the sample was looking. They said it was looking good so I hopefully wouldn't have to continue with the collection tomorrow because they were worried about that. One of the nurses told me that my CD34 cells were really high which was a good thing so that was promising. I reeeeeally didn't want to spend the night in the hospital with that line stuck in me all night!
Around 3pm the collection ended and they took samples of the stem cells to send to the lab. From then I had to wait to see if they had gotten what they needed, and if they did, I had to wait 2 hours for the line to be removed. I found out that they got almost twice the number of CD34 cells that they needed so the countdown to 5pm was on! I couldn't wait to get that line out! They took the line out at 5 and the nurse had to put pressure on it for 30 minutes. The nurse literally sat at my bedside and put pressure on my groin area for a half hour... we had a fun conversation lol. The protocol at the hospital was to treat the vein as an artery; since they weren't stitching it shut, that meant the 30 minutes of pressure, and after that I had to leave a 5lb sandbag on the area for an hour. It stopped bleeding almost right away but I had to wait anyway. An hour and a half after the line was removed I was able to get up and walk around and they wanted to make sure the clot held while I moved around. They patched it up with some gauze and tape and by 7pm they wheeled me downstairs while my lovely boyfriend got the car and we were able to go home. The second the nurses walked in at that 1 hour mark for the sandbag I started taking the sandbag off and the gauze and popped right up out of bed because I was so eager to leave (and also go to the bathroom!)
Lee checked in with me a few times during the collection to see how I was doing. He was there for me through the entire thing and everyone involved was absolutely wonderful! The stem cells were being flown out with the curriur this morning (Friday). Hopefully once she receives the transplant he'll let me know and keep me up to date so then I can keep the blog up to date!
Yesterday was certainly a very long day! But I feel awesome today! The side-effects have been gone since Wednesday evening (day 4 of the filgrastim) so that was certainly really helpful so I wasn't aching all day during the collection. I honestly feel completely back to myself aside from the slight pain and tenderness from where the line was.
My handsome honey being manly carrying my bag
The blood work came back and I was able to give myself the last filgrastim shot at 8am. Yes, I asked to give myself the shot because I've mastered it over the last 4 days making it completely painless. Per the NMDP, I had to wait 1 hour after the filgrastim injection for the process to begin so that was finally started at 9am. During the process, they want to make sure your blood isn't clotting through the tubes while it's being sent through to the apheresis machine so they use an anticoagulant to avoid that. The anticoagulant they use decreases calcium levels in the body so they give you a calcium drip. Symptoms of decreased calcium include tingling of the lips, possibly fingers, nose or other extremities. Probably 10 minutes in I started to feel my lips tingle a bit so they increased the calcium drip until the tingling subsided.
We were exhausted!
The entire day was just a lot of waiting. I think around noon the lab took a sample of what had been collected so far to see how the sample was looking. They said it was looking good so I hopefully wouldn't have to continue with the collection tomorrow because they were worried about that. One of the nurses told me that my CD34 cells were really high which was a good thing so that was promising. I reeeeeally didn't want to spend the night in the hospital with that line stuck in me all night!
The apheresis machine
Around 3pm the collection ended and they took samples of the stem cells to send to the lab. From then I had to wait to see if they had gotten what they needed, and if they did, I had to wait 2 hours for the line to be removed. I found out that they got almost twice the number of CD34 cells that they needed so the countdown to 5pm was on! I couldn't wait to get that line out! They took the line out at 5 and the nurse had to put pressure on it for 30 minutes. The nurse literally sat at my bedside and put pressure on my groin area for a half hour... we had a fun conversation lol. The protocol at the hospital was to treat the vein as an artery; since they weren't stitching it shut, that meant the 30 minutes of pressure, and after that I had to leave a 5lb sandbag on the area for an hour. It stopped bleeding almost right away but I had to wait anyway. An hour and a half after the line was removed I was able to get up and walk around and they wanted to make sure the clot held while I moved around. They patched it up with some gauze and tape and by 7pm they wheeled me downstairs while my lovely boyfriend got the car and we were able to go home. The second the nurses walked in at that 1 hour mark for the sandbag I started taking the sandbag off and the gauze and popped right up out of bed because I was so eager to leave (and also go to the bathroom!)
Lee checked in with me a few times during the collection to see how I was doing. He was there for me through the entire thing and everyone involved was absolutely wonderful! The stem cells were being flown out with the curriur this morning (Friday). Hopefully once she receives the transplant he'll let me know and keep me up to date so then I can keep the blog up to date!
Yesterday was certainly a very long day! But I feel awesome today! The side-effects have been gone since Wednesday evening (day 4 of the filgrastim) so that was certainly really helpful so I wasn't aching all day during the collection. I honestly feel completely back to myself aside from the slight pain and tenderness from where the line was.
My cells!
I sent this picture to a friend of mine and she replied: "amazing to think there's someones future in that bag." That really made me think. This could save someones life. We forget how delicate and precious our lives are until we fear we might not have another day. I'm so honored to have been given the opportunity to do this... and how easy it was for me to do it. Sure, it took time out of my life, but it was worth it and I'd do it again in a heart beat.
Thursday, November 15, 2012
Donation Day!
The day is going well. We arrived around 6:30am and they drew some blood to check my white counts. I gave myself the last injection around 8am and then we had to wait an hour before the collection could start. They put a line in my femoral vein and the process was kind of uncomfortable. The doctor used lidocaine to numb the area and they did it right in my hospital bed. I was totally fine with everything until I started to feel blood trickle down my leg and I started to get a little light headed. I don't do blood well. It feels like a weird pressure in my groin area but it's nice to be able to move both arms.
The side-effects are completely gone and I'm so thankful for that because it would make sitting here even more uncomfortable.
We are hoping they get a full collection today so I don't have to stay until tomorrow and it should be ending around 3:30pm. The line has to stay in for 2 more hours after the collection and then once they remove it I have to wait around for another couple of hours to be monitored but then I can go home hopefully. :)
The side-effects are completely gone and I'm so thankful for that because it would make sitting here even more uncomfortable.
We are hoping they get a full collection today so I don't have to stay until tomorrow and it should be ending around 3:30pm. The line has to stay in for 2 more hours after the collection and then once they remove it I have to wait around for another couple of hours to be monitored but then I can go home hopefully. :)
6 am
It's 10 minutes to 6 and neither of us slept much. I'd say we both got maybe an hour or so. My honey stayed up with me and kept me company because I was so anxious. He found a vending machine and brought me back my choice of snacks when I was hungry earlier :)
I have to say the aches are hardly noticeable and haven't been since last night so that's certainly a nice change!
Anyway, the next update will probably be from the hospital!
I have to say the aches are hardly noticeable and haven't been since last night so that's certainly a nice change!
Anyway, the next update will probably be from the hospital!
So Close!
Well it's 2am and I haven't slept at all, nor has my boyfriend because he's been awake with me. He gets an A+ for being awesome. I slept a lot earlier today so maybe that's why I'm not sleepy. I'm really nervous so he's stayed up talking to me and helping to calm me down. I'm oddly hungry to the point where it hurts so the boyfriend went downstairs to find some crackers or something. How awesome is he? :)
Monday, November 12, 2012
Filgrastim Injection #2
Well, I've made it to day 2! I woke up today not feeling the greatest... my legs were really achy, a dull ache in my lower back and my throat felt a little sore/swollen. Sometimes when I'm really overtired my legs feel that same ache so I almost thought that was what it was. I took some Tylenol and took a nice long shower and felt much better afterwards.
I did my shot around noon and it wasn't that bad. I'm actually kind of happy I'm doing it myself so I don't have to drive anywhere to get it done. A little pain at today's injection site and still a bit from yesterdays... almost like a bruise but that is to be expected.
I started to get some busy work done and was able to finish it but then I started playing some mindless games on my phone and instantly fell asleep on the couch. I actually slept most of the afternoon away... probably a good 2 hours or so.
Tomorrow is another day!
I did my shot around noon and it wasn't that bad. I'm actually kind of happy I'm doing it myself so I don't have to drive anywhere to get it done. A little pain at today's injection site and still a bit from yesterdays... almost like a bruise but that is to be expected.
I started to get some busy work done and was able to finish it but then I started playing some mindless games on my phone and instantly fell asleep on the couch. I actually slept most of the afternoon away... probably a good 2 hours or so.
Tomorrow is another day!
Wednesday, November 7, 2012
One More Week!
The donation is exactly one week away from today!
It really hit me yesterday because Lee mentioned that he'd be mailing the injections which will start on Saturday and then he emailed me a hotel confirmation number for Tuesday evening. I live about an hour away from the hospital that the donation is taking place at so we'll stay over at a hotel near the hospital so we won't have to get up so early on the morning of.
I sent my recipient a letter in the mail Monday but it has to go through Lee first. He'll get the letter and make sure it doesn't contain any identifying information and then he'll pass it on to her, wherever she is.
I've been thinking about her a lot and thinking about what she's going through as she begins preparation for the transplant. All that I know is that she'll be receiving chemo and/or radiation to basically destroy her immune system so her body can accept my stem cells without rejecting them. The NMDP website has information on what the patient will experience in preparation of receiving the transplant which can be found here: http://marrow.org/Patient/Transplant_Process/The_Preparative_Regimen.aspx
I know I've previously talked about my mother working in an oncology office and spoke of the many patients, that turned into friends, that lost their battle with cancer. When I think about my recipient, I picture her being every single one of those people I once knew. I picture them all getting the second chance at life that they all deserved and the thought warms my heart. I hope I make them proud.
It really hit me yesterday because Lee mentioned that he'd be mailing the injections which will start on Saturday and then he emailed me a hotel confirmation number for Tuesday evening. I live about an hour away from the hospital that the donation is taking place at so we'll stay over at a hotel near the hospital so we won't have to get up so early on the morning of.
I sent my recipient a letter in the mail Monday but it has to go through Lee first. He'll get the letter and make sure it doesn't contain any identifying information and then he'll pass it on to her, wherever she is.
I've been thinking about her a lot and thinking about what she's going through as she begins preparation for the transplant. All that I know is that she'll be receiving chemo and/or radiation to basically destroy her immune system so her body can accept my stem cells without rejecting them. The NMDP website has information on what the patient will experience in preparation of receiving the transplant which can be found here: http://marrow.org/Patient/Transplant_Process/The_Preparative_Regimen.aspx
I know I've previously talked about my mother working in an oncology office and spoke of the many patients, that turned into friends, that lost their battle with cancer. When I think about my recipient, I picture her being every single one of those people I once knew. I picture them all getting the second chance at life that they all deserved and the thought warms my heart. I hope I make them proud.
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