Showing posts with label acute myologenous leukemia. Show all posts
Showing posts with label acute myologenous leukemia. Show all posts

Friday, April 15, 2016

What Does It Mean to Live?

Phyllis and I met 2 years ago this month! Can you believe it?! She is doing well and she just got back from a trip to Hawaii with her family. Traveling and spending time with the ones you care about most are what I envisioned for her back before I knew her. When I first learned I was going to donate, my hope was that by me donating, someone would have a second chance at life. And when I think about life and living, that's what I dream about... traveling, exploring the world while being with the ones I hold nearest and dearest to me. Everyone has different ideas of living, but when it comes down to it, we are all human and we all want the same thing - love.

You often hear people ask, if you found out you only had X number of days to live, what would you do? So what would you do? Make the most of today and of every day. Put down your phones and live in the moment. Be present. You'll never remember the best day of technology you ever had but you'll make memories that will last a lifetime and when you're taking your last breath, you'll know that you truly lived.

Happy Friday!


Thursday, June 4, 2015

Dreams

It's that time again... time for an update: 

Phyllis is doing well and in fact, just had a birthday! It just so happens that my fiancee and I got engaged on her birthday a couple years ago (before we even knew her! - Crazy, right?!)

She and I speak regularly, maybe 2-3 times per week. We both wish we lived closer but sometimes life and circumstances just get in the way. Hopefully we will be able to see each other sometime this year? Personally, I think Americans work too hard and don't get enough vacation days :p I'd be fine taking a month or two without pay so I could travel. Ahh, I'll keep dreaming. :)

Serenity

Monday, April 14, 2014

Donor/Recipient Meeting!

I can't believe I haven't updated since 2013!

It is now April of 2014 and I have some wonderful news! Phyllis and her family planned a trip to the East coast and I was lucky enough to be able to meet up with her and her family members this past week. It was, by far, one of the greatest days in my entire life. My recipient is one of the most beautiful people, inside and out, that I have ever known and I was and am still at a loss for words. We got to spend a couple hours together but the time flew by. When it was time for us to go, I instantly felt like part of me was leaving. It hasn't even been a week since we met and I've already decided to start planning a trip to where she lives :)


Monday, December 9, 2013

Phyllis

Well, the one year mark from the donation came and went. I sent Lee my info out right away but considering the lag between NMDP and such, I assumed I wouldn't hear much for a while. To my surprise, within a couple days I received an email directly from my recipient! Her name is Phyllis and she lives almost completely on the other side of the country. We have been emailing back and forth since then and it has been such an awesome experience. I look forward to hearing from her and always smile when I see an email from her pop up in my inbox.

She's doing well and I've even gotten to speak with some of her family members too. She's an amazing woman and I so look forward to getting to meet her and her family and finally give her the hug I've been holding onto for her for over a year now. 

I cannot believe how much things have changed in over a year. I looked back at some of my older posts and was reminded to keep counting my blessings. 


Tuesday, November 5, 2013

Almost 1 Year Since the Donation!

Throughout this past year, my recipient and I have been able to correspond through letters that pass through NMDP to ensure anonymity. I have received letters from her husband, sister, mother, and son and I get so excited when I hear from her and her family. I just received a couple of letters last week that had been written back in September (there's about a month lag with sending it through NMDP and all).

But now, in exactly 10 days, it will have been 1 year since the donation and we will be allowed to release our contact information and correspond without going through NMDP. I've been counting down the days for a long time but since November started, I've been unable to contain my excitement!

Tuesday, September 3, 2013

Leukemia Free!

I received a card from my recipient midway through last month. She wrote me to let me know that at her 6 month check up she was still leukemia free! Amazing news! She wrote the letter in mid July so I've come to learn that it takes about a month for it get from her all the way to me.

At this point, it's been almost 10 months since the donation and I get more and more excited knowing that come November, we will no longer need NMDP to correspond.

Wednesday, July 17, 2013

Almost there!

Hello all,

No news lately but I'd assume that all is going well. I realized yesterday that we are midway through July which means we're 8 months in and only 4 more until the 1 year mark!

I hope everyone is enjoying their summer and getting some time to relax!

Monday, May 6, 2013

Wonderful News!

A little over a week ago I received a letter from my recipient saying that she's doing really well. She was released from the transplant facility before day 100 and actually could have gone home sooner than she did but her family was sick so they didn't want to risk it. She also said she was looking forward to meeting me and being able to hug me and thank me in person.

As everyone can imagine, I was so excited to get this letter - it truly means the world to me and I'm eagerly counting down until the 1 year mark in November :)

Monday, December 24, 2012

Engrafted Stem Cells!

I received a phone call on Friday with some news about my recipient. The stem cells have engrafted so she's making my blood cells now! She is doing well and was discharged from the hospital which is great news!

Merry Christmas!

Friday, December 7, 2012

Letters and Thankfulness

I'm currently on the west coast for some pharmacy conferences so I've been kind of out of reality for a few days and was surprised to see I had received a phone call from Lee. I listened to the voicemail and he had just wanted to check in because it has been about 30 days. He said he didn't have an update for me so my heart sank a little with disappointment but then he said he had a letter for me from my recipient! Obviously I called him back immediately and we chatted for a few minutes and he offered to email me a scanned copy of the letters (her husband wrote me one too!) and he's mailing the originals home so I can have them.

My recipient hand wrote me a letter and told me she had just gotten remarried and 24 days after she got married she was diagnosed with AML, which certainly changed their plans. Between the two of them they have 8 kids and 3 still live at home. She thanked me up and down and said that hopefully I'd meet them someday which absolutely thrilled me because I'd love nothing more but to be able to meet her and her family!

Then I read her husbands letter to me and I think I cried more through his letter because he told me what he had to watch his wife go through and that they couldn't find a donor. He said I was the only match in all of the US and Canada and if they couldn't find a match they were only going to do one more round of chemo and try some experimental medications. He told me that I saved his wife's life and I was their hero. This of course turned on the waterworks even more. I don't really feel like a hero, I really just feel honored to have been able to take part in this, but him telling me that means the world to me.

I've been really stressed out with trying to find a job after graduation and trying to figure out what I'm going to do and where I'll be within the next year and this just makes me realize how much more there is to life and what is truly important. I was able to spend Thanksgiving with my loved ones and will do the same in a few short weeks for Christmas and I couldn't be more thankful to be surrounded by people I love and by people that love me.